Towards a roadmap for COSEB: the next steps in harmonization of outcomes for epidermolysis bullosa
Articolo
Data di Pubblicazione:
2024
Citazione:
Towards a roadmap for COSEB: the next steps in harmonization of outcomes for epidermolysis bullosa / Korte, E. W. H.; Pasmooij, A. M. G.; Bolling, M. C.; Hickey, S.; Hussain, S.; Kiritsi, D.; Kottner, J.; Prinsen, C. A. C.; Sauvestre, A.; Sendin, G.; Spuls, P. I.; Tarrats, N.; Wally, V.; Welponer, T.; Laimer, M.; Van Den Akker, P. C.; Bardhan, A.; Bataille, P.; Bodemer, C.; Bolling, M.; Bruckner, A.; Chiaverini, C.; Clemett, V.; Collins, C.; Colmant, C.; De Rosa, L.; Duipmans, J.; Ebens, C.; Fernandez, M. F.; Gorell, E.; Guez, S.; Has, C.; Hickey, S.; Hsu, C. K.; Hussain, S.; Jain, R.; Kenny, T.; Kern, J. S.; Khanna, D.; Kiritsi, D.; Kitzmüller, S.; Korte, E.; Kottner, J.; Laimer, M.; Lara-Corrales, I.; Lee, M.; Li, W.; Lospalluti, L.; Marinkovich, M. P.; Martinez, A.; Mellerio, J.; Moss, C.; Mullins, O.; Murrell, D.; Ott, H.; Palisson, F.; Paller, A.; Pasmooij, M.; Petrof, G.; Pope, E.; Prinsen, C.; Salamon, G.; Salas-Alanis, J.; Salavastru, C.; Sauvestre, A.; Scherer, S.; Schräder, N.; Sendin, G.; Sprecher, E.; Spreitzer, C.; Spuls, P.; Tarrats, N.; Van Den Akker, P.; Wally, V.; Welponer, T.; Wertheim-Tysarowska, K.; Zahn, T.. - In: BRITISH JOURNAL OF DERMATOLOGY. - ISSN 0007-0963. - 191:3(2024), pp. 463-465. [10.1093/bjd/ljae200]
Abstract:
The COSEB initiative aims for standardized and uniform measurement by developing core outcome sets for epidermolysis bullosa. This report describes the COSEB workshop organized in December 2023, which led to a broad stakeholder consensus-based roadmap. Moreover, it highlights novel features of COSEB, including the pro-active engagement of stakeholders from the very beginning and the appointment of a multi-stakeholder advisory panel.
Tipologia CRIS:
Articolo su rivista
Elenco autori:
Korte, E. W. H.; Pasmooij, A. M. G.; Bolling, M. C.; Hickey, S.; Hussain, S.; Kiritsi, D.; Kottner, J.; Prinsen, C. A. C.; Sauvestre, A.; Sendin, G.; Spuls, P. I.; Tarrats, N.; Wally, V.; Welponer, T.; Laimer, M.; Van Den Akker, P. C.; Bardhan, A.; Bataille, P.; Bodemer, C.; Bolling, M.; Bruckner, A.; Chiaverini, C.; Clemett, V.; Collins, C.; Colmant, C.; De Rosa, L.; Duipmans, J.; Ebens, C.; Fernandez, M. F.; Gorell, E.; Guez, S.; Has, C.; Hickey, S.; Hsu, C. K.; Hussain, S.; Jain, R.; Kenny, T.; Kern, J. S.; Khanna, D.; Kiritsi, D.; Kitzmüller, S.; Korte, E.; Kottner, J.; Laimer, M.; Lara-Corrales, I.; Lee, M.; Li, W.; Lospalluti, L.; Marinkovich, M. P.; Martinez, A.; Mellerio, J.; Moss, C.; Mullins, O.; Murrell, D.; Ott, H.; Palisson, F.; Paller, A.; Pasmooij, M.; Petrof, G.; Pope, E.; Prinsen, C.; Salamon, G.; Salas-Alanis, J.; Salavastru, C.; Sauvestre, A.; Scherer, S.; Schräder, N.; Sendin, G.; Sprecher, E.; Spreitzer, C.; Spuls, P.; Tarrats, N.; Van Den Akker, P.; Wally, V.; Welponer, T.; Wertheim-Tysarowska, K.; Zahn, T.
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